They told my mommy that I
would not be going home with her from the NICU.
She slammed her hands on the table
and said, “we are not going to let him die!”

She then held me and prayed!

You would fight to save your baby too, right? 

They told my mommy  that I
would not be going home with her from the NICU.
She slammed her hands on the table
and said, “we are not going to let him die!”

She then held me and prayed!

You would fight to save your baby too, right? 

Would it break your budget to donate at least $1.00 to help Lucas?

Hi, I'm Lucas!

I was born with a rare genetic condition with no medical cure, Nonketotic hyperglycinemia, or NKH. This condition is SO rare that it's considered an "orphan disease,” this means it affects so few people in the world (500 for NKH), that there is little to no funding for research to cure it! You can learn more about my story here. NKH causes many challenges with development, seizures, autism, cerebral palsy, and CVI blindness. You can hear my story from me and my parents on my YouTube Channel. It would be great if you could subscribe and help me raise awareness. 

Research funds are left solely to the parents, and families of those affected, and cures do not run cheap! In fact, gene replacement therapy is the only real medical cure being researched for NKH, and the projected cost is three million dollars!

In the sections below you will find:
How you can help
Ways to Give
How to Stay Connected
How to send me notes and prayers

‹ Get Your Own FREE TikTok Famous Tee 

Thanks to our sponsor the Tik Tok Famous shirt is FREE just pay for shipping. Limit one per person. Thank you for helping Lucas raise awareness for NKH research. You can also add a donation of any amount when you checkout.

Get a FREE Lucas John Foundation Bracelet

Do You Want to Help Raise Awareness to Save Lucas?

Lucas-John-Foundation-Shop-Bracelet

Here's Other Ways You Can Give!

Kids Can't-Wait for a Cure Campaign!

My family is praying for a miracle. The goal is to raise $3 million dollars for gene therapy! We started the 3 million dollar campaign with the hope of connecting with 3 million people to give $1.00 to help me fund the cure. Will you give at least $1.00 and share my story with a friend? You can change my world, and 500 children worldwide with NKH, plus countless more in the future who have or will be born with NKH!

Pledge today and help me, please?

Together we can all donate $1.00 and share with a friend or two, right?

To give a tax-deductible donation today, click the button below.
Lucas John Foundation is registered with the IRS as 501(c)3 (ID: 83-3683882) tax-exempt status. AZ Nonprofit corporation. 

Help Us Reach Our $3M Goal!

2% Complete
47,640 of 3,000,000 Dollars

Let's Stay Connected!

I really appreciate your help and urge you to share my story on your social then nominate a friend to check out this site! While you're at it, make sure you follow me and help me celebrate my journey to the cure!

Follow Me on TikTok!

Share My Story with Your Friends!

Stay In the Loop!

Drop your email and we will keep you up-to-date on my journey to healing and our fundraising activity.
Thank you again for your support!

Please enter your name.
Please enter a valid email address.
Something went wrong. Please check your entries and try again.
81580233_463918580911072_8279389013182251008_n

Stay In the Loop!

Drop your email and we will keep you up-to-date on my journey to healing and our fundraising activity.
Thank you again for your support!

Please enter your name.
Please enter a valid email address.
Something went wrong. Please check your entries and try again.

Do you have a question or want to send me a message or prayer?

Use the form below and my mommy will read them to me!
You can also send letters or packages to:
Lucas Culp c/o Shawna Culp PO Box 41135, Mesa, AZ 85274

 

Find out how to get more involved by visiting the Lucas John Foundation website